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|Title||Evaluation of Early Intervention Program Provided By the Right to Live Society for Children with Down Syndrome in Gaza Strip: Family Perspective|
This study, to the knowledge of the researcher, is considered the first evaluation study about the field of children with Down's Syndrome (DS) in Gaza Strip, which aims to perceive families' perspectives about services in Right To Live Society (RTLS). The general objective of this study is to evaluate the services provided in EIP in RTLS from families' viewpoint for their Down's Syndrome children. The problem of the study has identified the following research questions: * Research questions: To what extent EIP services are effective from family perspective? To what extent families are satisfied with EIP services in the RTLS? To what extent does a family participate in implementing the rehabilitation plan for the D.S child? Is there any relationship between family satisfaction with their level of participation in implementing rehabilitation plan? Is there a relationship between family satisfaction with detected socio-demographic variables? What is the family perspective regarding the performance of service provider in EIP in RTLS? * Method: Participants: The sample was estimated 73 mothers of D.S children from total population, 55 from EIP whose children have continuous care in EIP, 18 from kindergarten whose care was ended from EIP, aged between 6 months to 72 months. Baseline measures: In this study, the researcher developed a structured questionnaire according to the review of previous literature which consists of 5 domains of general satisfaction, evaluation service provider, effectiveness of capabilities development, effectiveness of physiotherapy services and accessibility of services using Likert scale of 5 points (1= strongly disagree, 2= disagree, 3= uncertain, 4= agree, 5= extremely agree), in addition to open-ended questions and general information questions. Statistical analysis: Cross tabulation, descriptive statistics, person correlation and non parametric test "Chi-square". * Results: 1) Family's perspective with regard to the effectiveness of EIP services was positive. This is shown to all available services. 2) The family satisfaction with regard to the services in EIP in RTLS was high (88.8%), in spite of the critical political situation we live in and the limited sources and services we have for disabled children. 3) The level of family's participation in rehabilitation plan was 85% extremely participated, 15% was participated little. 4) Results showed that there is no statistical significance relationship between family's satisfaction with the level of family participation in implementing a rehabilitation plan. 5) Results showed that there are no statistical significant relationships between family's satisfaction with selected socio-demographic variables. 6) Family's perspective about the service provider in RTLS was a positive. This result is associated with our Palestinian values and cultural traditions which are Islamic in nature. * Recommendations: Policy makers and managers of RTLS should be informed with the results of this study to take necessary steps to improve the rehabilitation services for D.S client. The staff of EIP should be encouraged to increase their knowledge and skills regularly through continuous education. Establish an internal system in the RTLS to evaluate regularly the services provided to clients for all the different programs.
|Publisher||the islamic university|
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